Anyone use specific codes for Dravet Syndrome?

I was wondering what other institutions use for capturing Dravet Syndrome? There isn't a specific code for this but it is a distinct diagnosis that impacts the patients life so I was wondering how others capture this diagnosis. 

I have a patient with Dravent Syndrome with pathogenic frameshift SCN1A variant and intractable epilepsy. I want to be able to capture this accurately.

American Epilepsy Society currently has a letter out to get a distinct ICD-10 code for Dravet Syndrome, but there still isn't one at this time. 


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